Title Arachnoisitis.co.uk


Dr. Sarah Andreae-Jones MB BS (Smith)

Arachnoiditis Survey

The purpose of this survey is to help reveal the numbers of those suffering from ARC and to what extent their disease has progressed.

Sarah carried out her original survey a few years ago, so if you have already answered these questions please do not do so a second time, as that would produce incorrect results.

Taking part could not be easier, simply cut and paste the questions onto an email to us atmike.feehan@arachnoiditis.co.uk - putting 'Survey' into the subject line. and we will send your replies onto Sara. Should you have issues which are not covered in the survey that you wish to comment on, please do so at the foot of the completed answers.

You can rest assured that your privacy is guaranteed and that none of your personal comments will be used in any way, unless we have your permission to do so.

Survey

Please state : Age M/F

1. When were you diagnosed with Arachnoiditis?
(delete those which do not apply) 1 to 5 years, 5 to 10 years, or over 10 years ago.

Which spinal area is involved? lumbar/thoracic/cervical

Do you have cranial involvement? Yes/No

Do you have any other existing spinal condition e.g. stenosis (narrowing), herniated discs, degenerative problems..if so, where and what?

2. How long did you have symptoms prior to diagnosis? 1-5years, 5-10years, over 10 yrs

3. What was your initial back problem?

4. Do you have spina bifida occulta? Yes/No

5. Have you had surgery? If so, lease specify when and what procedure(s)

6. Have you had spinal (epidural) anaesthetic for any surgery or in childbirth. If so, please give details .

7. Have you had 1 or more myelograms? If so, how many and which contrast medium(s) was used?

8. Have you had 1 or more epidural steroid injections?

9. Do you have any other current diagnoses, e.g. diabetes, fibromyalgia, MS?

10 Have you had any serious illnesses in the past, especiallyliver/kidney problems?

11. What medication are you currently using? If on morphine or other opiate,please state how long you have been using it.

12. Please state if you have used any of the following: anti-inflammatory drugs such as Brufen, Naproxen (for how long?) anticonvulsant drugs such Tegretol opiate drugs

13. Have you ever had a serious viral infection such as glandular fever, hepatitis: Yes?No? If Yes, please specify, and when.

14. Have you ever had meningitis? Yes/No If, Yes, how long ago?

15. Which parts of the body cause you pain? Please delete those which do not apply:
head
face
neck
shoulders
chest
back(upper thoracic)
front
abdomen
lumbar spine/lower thoracic
pelvis/groin
hips
legs
feet
joints (if so, which?)

16. How would you describe your pain(s)? Please delete those which do not apply and indicate where these pains are physically:

burning
gripping
stabbing
electric shock
other(please specify)

17. Do you experience other unpleasant sensations, not including tingling? Please try to describe them.

18. Please delete those which do not apply to you from the following list of symptoms/conditions/diseases:
Stiffness :
Muscle cramps/twitches/spasms
Weakness
Balance difficulties
Numbness/tingling
Bladder/bowel/sexual dysfunction
Difficulty in thinking clearly/decision making/memory
Depression/anxiety
Sleep disturbance
Increased/decreased sweating
Heat intolerance
Intermittent low grade fevers
Flu-like feeling and malaise
Raised ESR /white cell count
Enlarged lymph nodes
Joint pains
Skin rashes
Frequent infections
Sinusitis
Slow healing/tendency to scar easily
Limbs/generalised swelling
Trouble swallowing
Angina type chest pain (but no heart disease found)
Weight gain
Reduced mobility (i.e. house/chair/bed bound?)
Allergies (new, e.g. multiple drug allergies)
Dizziness/vertigo
Dry eyes/mouth
Bruising
Fatigue
Dental problems (tooth/gum)
Low potassium
Abnormal blood tests
Abnormal kidney function
Abnormal liver enzymes
Osteoporosis
Shortness of breath
Lung problems
Diagnosis of : Sjogren’s disease
Lupus
Raynaud’s disease
Other autoimmune disease
Diagnosis of MS
Diagnosis of fibromyalgia/chronic fatigue syndrome/M.E.
Gastrointestinal problems e.g. irritable bowel syndrome/colitis/indigestion
Visual problems
Female respondents only: menstrual irregularities, if pre-menopausal, otherwise earlymenopause/painful periods.

Thank you for responding. The data gathered from the survey will be used to help other sufferers